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LWPES Call for Nominations
Nominations are now being accepted for the following Board Positions:
President-Elect (3 year commitment: President-Elect, President, Past President)
Secretary (4 year term – Bylaws change from six to four years to be approved)
Director (3 year term)
Please send your nomination to Marsha Davenport, Chair of the Nominations Committee at mld@med.unc.edu. In your nomination, please include a brief note telling why you think this person would be an ideal candidate for the position.
For more detailed information about the responsibilities of each position, please click here:
President Elect
Secretary
Director
Study Network of Pediatric Endocrinology (SNoPE)
After a 24 month gestation, we are proud to announce the delivery of SNoPE (Study Network of Pediatric Endocrinology) on the members only portion of the LWPES website http://www.lwpes.org/members/members.cfm. SNoPE is an exciting and potentially useful creation which will grow and develop with time. All the parts seem to be working well. SNoPE is there for you to use for collaborative interactions among centers, investigators and fellows. SNoPE lives in the “Gateway” within the LWPES website and contains:
1. SNoPE sponsored studies to which you are invited to join (currently 2).
a. Predictors of Stress, Parental Overprotection and Perceived Child Vulnerability among Parents of Children Affected by Disorders of Sex Development (DSDs), Steven Chernausek and Amy Wisniewski (PIs)
b. SNoPE Multicenter Study of the Outcomes of Estrogen Replacement in Pubertal-Aged Girls with Turner Syndrome, Judy Ross (PI)
2. Protocols initiated by individuals which you can join or you can initiate
your own collaborative study (ies). The current listed protocols
are:
a)Investigator Initiated Study in rhGH treated patients with Turner Syndrome comparing two low doses of estradiol by patch to induce puberty - Dr. Robert Rosenfield, PI
b
) a study of the effect of beta cell
rest in adolescents and young adults with type 2 diabetes with
Kristina Rother as PI and
c)
the Neonatal Diabetes Mellitus Registry with Louis Philipson
as PI.
3. A search engine on the Gateway for protocols by investigator(s), topic,
and title.
September 7-8, 2009
Welcome Reception the evening of September 6th
Crown Plaza Times Square ~ Midtown Manhattan, New York, NY
Board Review Chair ~ Alan Rogol, MD
Registration is now open. Please click here for more information.
Hotel reservations close August 8.
CLICK
HERE to make hotel reservations on line at the Crowne Plaza Times Square Manhattan or call the hotel directly at 800-980-6424 or 212-977-4000. Rooms are $239 per night for a single/double.
LWPES/ESPE 8th Joint Meeting
Global Care in Pediatric Endocrinology
September 9-12, 2009
New York City, NY
www.lwpes-espe2009.org/
Registration for the Joint Meeting is now open.
Please click here to register for the Joint Meeting. http://www.lwpes-espe2009.org/
Register before August 7, 2009 to receive a discount on registration fees.
Be sure to check the Joint Meeting Website regularly for meeting: www.lwpes-espe2009.org
NIH Launches New Web Site for Parents on Medical Research
The National Heart, Lund and Blood Institute (NHLBI), in
partnership with other NIH Institutes, has created a comprehensive
website designed to give parents and healthcare providers
alike the information needed to understand clinical research
in children and make informed decisions about participating
in a study.
In a format geared to all educational levels, the website combines text, graphics, and documentary film interviews with experts, parents, and children themselves to give viewers an "inside view" of pediatric clinical research. It can assist caregivers in answering patients' questions about research. Families who are contemplating enrolling their child in a clinical study can use the information to augment their understanding and complement the informed consent process. The site has sufficient content to be used as an educational tool for trainees and junior faculty about the key concepts of pediatric clinical research. Based on focus groups, we organized the information into easily-accessible chapters for locating information quickly, something often needed in emergency research. The content is not copy-writed and the DVD-based documentaries may be downloaded to run in waiting rooms or hospital libraries.
The "No More Hand-Me-Downs: Research Designed for
Children" theme of the website represents the thinking
of our many colleagues across NIH, DHHS, the research community.
Please visit the site at:
www.ChildrenAndClinicalStudies.nhlbi.nih.gov
Please contact the NHLBI directly if you have any questions or comments.